Purple Day

This is Mr. Boyle, he was Margs teacher the first 2 and 1/2 years at Valley.

Here is Grandpa K, Monty and Margs

Friday, March 26, was Purple Day to raise awareness for Epilepsy.  I had leftover shirts from the walk, and sent them to school for Margs' teacher, aid, former teacher, and another aid to wear.  I ordered bracelets from the IDEA League http://www.idea-league.org/  for her to share with who she wanted.  Margs was very pumped up and so exciited, we put her hair in a pony tail with a purple ribbon and purple head band.  She went to school nicely and had a great time being honored by all of those that love her there.  She has been at Valley High School longer than any other student.  I think she has been there for 6 years, and most students are there only 3.  She gave her bracelets to the nurse, the administrative assisstant and the principals, alot of her friends and other people.  I'm sure she and her dog and aid were quite a site with their purple and her big smile.  Grandpa came over to help in the morning to help me get her to school.  She gave him a bracelet.  Her teacher has told me she took pictures, but we haven't seen them yet.  I cannot tell you what the IDEA League has meant to me for support after nearly 18 years of being alone in this journey of Dravet Syndrome.

The med increase of the Frisium has seemed to slow down the seizures, but has really messed with her sleeping.  We are still trying to determine just what is going on with naps and night time.  She is still having seizures, and Monty is still without a clue.  We will continue to work with him, he is a great dog.