STP increase. Yesterday after 3 am seizures this week we decided to go up on the STP. Now at 500mg in the morning and 500 mg in the pm. She's pretty cranky in the morning. But already I've noticed an appetite increase, which would correlate with the increase in Onfi. When she started the Clobazam (now Onfi) her appetite went up. She has switched just today from chicken and mayo (I'll bet its been at least 6 months on this spree) back to rice, which I haven't cooked in forever. So, back to rice.
Hoping the days get better and the mood is better and the seizures are gone and we don't have to change anything for a long time. And the appetite slows down.
And maybe she'd get out of her pj's and get out of the house more than 2x per week. ugg
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My service dog Monty
Dravet Syndrome, Make a Wish Trip, 4 Paws for Ability, a Service Dog organization.
Barney, Baby Bob and BJ
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My service dog Monty
About Me
- Margaret
- I am 22 and my birthday is in February. I had my first seizure at 4 months of age, within hours of my 2nd DPT shot. I was diagnosed with Dravet Syndrome in January of 2007. I love butterflies, Rainbows, Barney and Ariel. My brother Jacob graduated from the University of Iowa. I live with my Mom and Dad and our dog Emma and my Service Dog Monty.
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